Yesterday, December 10, I had a baby shower out of town. I was nervous to go up, considering the week we had. But things were looking up, so I felt okay to leave for the day. I went up to hang with my family for the evening. So many wonderful friends and family showed up for the shower. It was very nice (thanks mom and sisters + Amanda).
As we were playing games, I received a text message from my husband. It read... "they're taking him off respirator right now!!! Hope he handles it "... followed with a text 15 minutes later that read "Extubated well, resting on CPAP!!! Great day!!!"..... I was so overjoyed! I interrupted the game and tearfully made the announcement as we all cheered and clapped and fought back tears! This was an amazing day!!!! The best gift ever!!!!
I was so happy my husband was there. He just showed up at the right time! I guess the plan was to change his tube to a large tube since he's grown. His nurse and RT talked to the doctor and basically said "hey... we're pulling the tube to put the larger in. We know this baby well, lets give him a chance with CPAP. If it doesn't go well, we'll be prepared and have everything set up to intubate immediately." Doctors went with it! It was a success! SO happy he has primary nurses... they know him so very well! It's heartwarming to know they care so much for him too! I did ask about what it would take for him to go back to ventilator, as I know this is a possibility if he doesn't do well with the CPAP. His doctor said even if he started to require higher oxygen levels, they'd rather have him on high levels and on a cpap than on a ventilator, BUT if he starts up with the A's and B's again (apnea and brady cardia), then they'd have to most likely intubate agian-- but he hasn't had any! So he's hanging strong! Nurse said today, "he is furious when he is hungry". LOL She was sweating when I get there trying to get him to cooperate with his care. LOL
Austin has since been doing GREAT on the CPAP. His peep is on the high end to ensure he handles it well (7).. and oxygen at around 30%. They have upped his feeds to 22mls. He still needs to start packing on the weight... but he'll get there. He is a trooper! I love him so. I told him so many times how proud of him we all are! I tell him about all the prayers everyone is saying for him. He is so loved! What an inspiration this small little 2 lb 11 oz baby boy is to so many!!! Awesome!!!
**Pictures to come soon. I have some good ones! My computer is not cooperating with me for whatever reason, when it comes to downloading my pictures... hang tight... I'll post soon enough!**
Again, thank you all so very much for your love, support and prayers. This journey is emotional... but its my life, and I love it. I get scared from time to time... but the Lord eases those fears. I am calm, confident and standing strong. I have a new look at life and the things that I do and do not have control of. I am now able to allow God do his work the way he wants, and be okay with that. I have my selfish moments, but overall, I am letting God do what is best and what He has planned for Austin, my self, my husband and older son, Drew. We are okay with this change in our lives. Its actually a pretty awesome life. I have so many things to be thankful for! Two beautiful boys... and I get to see them both grow stronger each day. I am actually pretty fortunate... most people don't get to see how a baby grows and develops while in utero. I do... just with a twist... :o)
Many blessings to all!!!
Please pray for Austins NICU friend Adaya. She is one week younger (to the day) than Austin. She is getting over pneumonia and has been fighting a fever with a very high heart rate today. She is an amazing little fighter with an amazing mother, whom I have grown close to. She is so beautiful! Her mother and I are glad to have one another, and have already talked wedding plans for our two babies. LOL. Thank you for prayers always!
xoxoxo
Our little Miracle
"And the Child grew and became strong in spirit, filled with wisdom; and the grace of God was upon him." ~Luke 2:40
Sunday, December 11, 2011
Friday, December 9, 2011
A turn for the better!
Before I went to bed last night, and feeling so helpless and thinking a lot about the what ifs... I called to check in on Austin. He was still at 43%, but hanging in there. Okay, I can deal with that... at least he is standing still and not getting "worse". I go to bed, pray and fall asleep. I awake to pump at 1:30. When I am finished, I called down and talk to his nurse. She said "oh, I'm so glad you called... I was hoping you'd call.." (my heart kind of began to nervously race)..."Austin's oxygen is at 28%!!!!!! WOW!!!! I couldn't believe it. I said "are you serious??? really?" and began to cry. I was really feeling terrible yesterday. I had a lot of negative feelings. I did not like how I felt yesterday... but I really felt as though he was just so over it all. It was breaking my heart to see him not making any progress... but he did! AND BIG PROGRESS!!! 43% to 28% in just a few hours! AWESOME! I called again at 5:30a and he was still at 28%, but his tube was coming loose and while they were re taping it, he did have to be bagged b/c his HR dropped and wasn't rising quick enough... but with in a half hour she was able to get him back down to 30%.
When I walked in this morning, it was very noisy and alot of alarms going off. Just busy. Austin does not like the noise and does not like commotion. He had a couple desats, but was always bringing himself back up. She had him set at 33%. I am okay with that! He's moving in the right direction. During rounds the doctors all agreed his progress is a good sign that the steroids are doing their job. He gained over 40 grams and is now 1210g = 2lbs 10oz. I held him for KC today. We all watched as he was being moved over to me, water flush down his vent tube from condensation of his vent tube. He dropped O2's and HR and kind of hung out low... so he was bagged again. This time I was so calm.... I felt fine... I knew he was okay. I love that little boy! I made up some songs for just him and I and was singing them to him. I brought a book, which he loves story time, and today's book was a silly story called Aliens Love Panta Claus...picked out by his older brother, of course! He opens his eyes and loves to listen to me.
I have a baby shower tomorrow back home, (about an hour and a half away) and until today, I was so nervous about leaving. Thinking of 'what if' this or that... but he helped me so much by making those small, but major, progressions!
GOD IS GOOD!!!!
Thank you all for your continued prayers! They are working miracles for Austin! I wish I could hug each and every one of you at this very moment I am so so so HAPPY he's making such a turn around!
When I walked in this morning, it was very noisy and alot of alarms going off. Just busy. Austin does not like the noise and does not like commotion. He had a couple desats, but was always bringing himself back up. She had him set at 33%. I am okay with that! He's moving in the right direction. During rounds the doctors all agreed his progress is a good sign that the steroids are doing their job. He gained over 40 grams and is now 1210g = 2lbs 10oz. I held him for KC today. We all watched as he was being moved over to me, water flush down his vent tube from condensation of his vent tube. He dropped O2's and HR and kind of hung out low... so he was bagged again. This time I was so calm.... I felt fine... I knew he was okay. I love that little boy! I made up some songs for just him and I and was singing them to him. I brought a book, which he loves story time, and today's book was a silly story called Aliens Love Panta Claus...picked out by his older brother, of course! He opens his eyes and loves to listen to me.
I have a baby shower tomorrow back home, (about an hour and a half away) and until today, I was so nervous about leaving. Thinking of 'what if' this or that... but he helped me so much by making those small, but major, progressions!
GOD IS GOOD!!!!
Thank you all for your continued prayers! They are working miracles for Austin! I wish I could hug each and every one of you at this very moment I am so so so HAPPY he's making such a turn around!
Thursday, December 8, 2011
Hanging on.
So Austin did have another scary episode in which he needed to be bagged again Tuesday night around 9:00pm. His HR dropped to a very low 38. He clamps down and needs some help to get things back up. He recovered well, and went on to have an excellent night. He had a great day yesterday. I held him for KC and read him a book. He was baptized and really looked well. His oxygen is still between 40%-50%.... but he's hanging in there. We should see some steroid affects in the next couple days, and if not (which we really need to see them start working) then his vent tube will be switched out to a larger sized tube which is a larger hole. The airway should really open up in the next day or two, if the steroids work, and then he should be able to come off of the ventilator. Yesterday he weighed 2 lbs 10oz, but lost a little over 20 g and is back to 2 lbs 9oz. Still needing him to put on some weight, thus they continue to up his calories with fortification.
Today he is doing okay. He's desatting here and there, but always able to bring himself up. He has been set at a steady 43% oxygen all day. I read him a book today and he liked it! He listens and then as soon as I am done, he closes his eyes and falls asleep. I love it! I held him and talked to him and made up some Austin songs... it was nice. He had a pretty good day. I called to check on him at 6:15, he had another dip in oxygen and his HR dropped some too, but he just needed a little stimulation (brady cardia). I love this little boy so much and hope and pray that I never have to face the reality of what this situation is capable to bring. I feel confident he'll be home with me one day, but its been hard to shake the experience we had Tuesday afternoon. My heart races and my nerves are a wreck each time I drive down to the hospital and walk through the NICU doors. I don't want to see that again.
Please continue to pray for him, as I know you all will. Specifically - that the steroids work... that he's able to hang in there and not continue to have brady's and oxygen drops. I love him so. Thank you all!
OH... and his hair is getting lighter and lighter! He's going to be blond! He looks a lot like Drew as a baby, and makes a lot of the same expressions. So neat!!!!!
Today he is doing okay. He's desatting here and there, but always able to bring himself up. He has been set at a steady 43% oxygen all day. I read him a book today and he liked it! He listens and then as soon as I am done, he closes his eyes and falls asleep. I love it! I held him and talked to him and made up some Austin songs... it was nice. He had a pretty good day. I called to check on him at 6:15, he had another dip in oxygen and his HR dropped some too, but he just needed a little stimulation (brady cardia). I love this little boy so much and hope and pray that I never have to face the reality of what this situation is capable to bring. I feel confident he'll be home with me one day, but its been hard to shake the experience we had Tuesday afternoon. My heart races and my nerves are a wreck each time I drive down to the hospital and walk through the NICU doors. I don't want to see that again.
Please continue to pray for him, as I know you all will. Specifically - that the steroids work... that he's able to hang in there and not continue to have brady's and oxygen drops. I love him so. Thank you all!
OH... and his hair is getting lighter and lighter! He's going to be blond! He looks a lot like Drew as a baby, and makes a lot of the same expressions. So neat!!!!!
Tuesday, December 6, 2011
Emotional rollercoaster is an Understatement
I arrived to the hospital today with the book, How the Grinch Stole Christmas. My first day to the start of my daily reading to Austin. I was excited to see him and read to him. My husband was already there. My first question, as always-"how's Austin today?". Everyone said how touchy he is acting. Desatting a lot, and his oxygen requirements were over 50%. They had just ordered and x-ray on his chest to check his tube placement. He was needing secretions suctioned from his lungs every 10-15 minutes, a change from once an hour or longer.
The x-ray is done, and as his nurse is laying him back to a comfortable position, he clamps down, holding his breath and not taking breaths. Yes the vent is in there, but he is clamped down. She calls for another nurse and his alarms are going off. Scotty and I are standing in the hallway, and I see his numbers dropping (oxygen stats) 80, 72,53,38,27....... He's not getting his oxygen..... He is pale white.... pale pale pale white. I said, "Scotty, I don't think he's breathing..." His isolette is surrounded by about 6 nurses and RT's (respiratory therapists). His heart rate drops 110. 105, 93, 86...... Then it comes up to 102 112, down to 98, up to 116... and keeps rising...... His oxygen stats are going up, 55, 68, 77 and slowly rise from there. A nurse comes to us as we're crying, standing far enough to be out of the way but close enough to check on whats happening. She said, "I'm sorry, but he's recovering. He's a little pale still, but his color will pinken up here shortly." We were crying. He'd never had an episode like that. It was so awful. We immediately went to his bedside after he was okay, and nurses had cleared out... we both put our hands in there and talked to him. He scared us more than we've ever been scared in our lives. From here --there were blood tests and viral cultures ordered. The x-ray looked normal, and although he isn't acting like a "sick baby" they're going to do the tests to rule these things out. He started the steroids yesterday... things should be moving in the other direction.
Ventilator setting adjustments were made. His pressure time was changed and breathes given reduced. So basically, instead of getting many, short breaths, he's receiving longer inhale and exhale periods.... opening lungs and airway more. **make sense..?** This really helped him out! I started to see improvements in less than 2 hours. He wasn't desatting.... his oxygen requirement went down a little bit... he needed less suctioning. If that's what he needed and he knew it and wanted something done... he sure did get our attention... I just don't want him to EVER do that again. It was so scary!
His blood work came back great. His blood gas was great. So far, no signs of infection or sickness per his blood work. Waiting on the results of the cultures. I stayed all day (11-7). I needed to stay until he made me feel better. And he did! I read to him and he looked at me and listened. He had a couple desats, but came right up and wasn't dropping low at all. He had more in the first few minutes I had arrived than in the 4 hours after the ordeal.... He took well to the vent adjustments.
All in all... today was crummy. BUT I choose to focus on his turn around. He dug up the strength and made it through the absolute worse moment, thus far, of his NICU stay. Then he took well to the adjustments made. He's so strong. I talked and stayed with him all afternoon. He rested a lot. He looked at me a lot. He still squirmed as his usual self does. And he smiled a lot this afternoon too! I love my little Austin.
I hope that I can continue to have the strength I've had this long... but I am not sure I can have the strength to stand by and watch that again. I don't want to find out if I would have the strength twice. Never want to know.
(BTW... today Austin is gestationally 31 weeks....)
GOD IS GOOD. Austin is getting baptized tomorrow at 1 pm.
Many thanks for all of your love, support, and continual prayer. May God continue to Bless each of you.
The x-ray is done, and as his nurse is laying him back to a comfortable position, he clamps down, holding his breath and not taking breaths. Yes the vent is in there, but he is clamped down. She calls for another nurse and his alarms are going off. Scotty and I are standing in the hallway, and I see his numbers dropping (oxygen stats) 80, 72,53,38,27....... He's not getting his oxygen..... He is pale white.... pale pale pale white. I said, "Scotty, I don't think he's breathing..." His isolette is surrounded by about 6 nurses and RT's (respiratory therapists). His heart rate drops 110. 105, 93, 86...... Then it comes up to 102 112, down to 98, up to 116... and keeps rising...... His oxygen stats are going up, 55, 68, 77 and slowly rise from there. A nurse comes to us as we're crying, standing far enough to be out of the way but close enough to check on whats happening. She said, "I'm sorry, but he's recovering. He's a little pale still, but his color will pinken up here shortly." We were crying. He'd never had an episode like that. It was so awful. We immediately went to his bedside after he was okay, and nurses had cleared out... we both put our hands in there and talked to him. He scared us more than we've ever been scared in our lives. From here --there were blood tests and viral cultures ordered. The x-ray looked normal, and although he isn't acting like a "sick baby" they're going to do the tests to rule these things out. He started the steroids yesterday... things should be moving in the other direction.
Ventilator setting adjustments were made. His pressure time was changed and breathes given reduced. So basically, instead of getting many, short breaths, he's receiving longer inhale and exhale periods.... opening lungs and airway more. **make sense..?** This really helped him out! I started to see improvements in less than 2 hours. He wasn't desatting.... his oxygen requirement went down a little bit... he needed less suctioning. If that's what he needed and he knew it and wanted something done... he sure did get our attention... I just don't want him to EVER do that again. It was so scary!
His blood work came back great. His blood gas was great. So far, no signs of infection or sickness per his blood work. Waiting on the results of the cultures. I stayed all day (11-7). I needed to stay until he made me feel better. And he did! I read to him and he looked at me and listened. He had a couple desats, but came right up and wasn't dropping low at all. He had more in the first few minutes I had arrived than in the 4 hours after the ordeal.... He took well to the vent adjustments.
All in all... today was crummy. BUT I choose to focus on his turn around. He dug up the strength and made it through the absolute worse moment, thus far, of his NICU stay. Then he took well to the adjustments made. He's so strong. I talked and stayed with him all afternoon. He rested a lot. He looked at me a lot. He still squirmed as his usual self does. And he smiled a lot this afternoon too! I love my little Austin.
I hope that I can continue to have the strength I've had this long... but I am not sure I can have the strength to stand by and watch that again. I don't want to find out if I would have the strength twice. Never want to know.
(BTW... today Austin is gestationally 31 weeks....)
GOD IS GOOD. Austin is getting baptized tomorrow at 1 pm.
Many thanks for all of your love, support, and continual prayer. May God continue to Bless each of you.
Monday, December 5, 2011
Walking on Sunshine
Although its been yucky and rainy all day... I'm walking on sunshine!!! I have been enjoying my time with Austin so much! Being his mother is amazing!! Scotty and I both did kangaroo care with him yesterday! his stats were pretty good yesterday... and after a long talk with the doctor, and a few days of my own thoughts and research on the subject... we have decided to go ahead and do steroids for Austin. He needs to get off of the ventilator. Something he doesn't "need". Its only causing irritation to his airways, and so because of some minor swelling, he's requiring more oxygen, and the steroids should help him in reducing the swelling and getting extubated.
Today Austin is 1182 g = 2lbs 9oz. He is 14 1/2 inches long! He still needs to, on average, gain more weight per day, but has been resting more throughout the day, so hopefully that will enable him to hold onto his calories!! His feedings are going very well, and they upped his caloric intake today. Crossing fingers! I held him (KC) today for a while, and then I gave Austin a bath!!!!!! This was so amazing to do! I felt so needed! It was awesome! I was so happy when his nurse asked me if I wanted to do it! What a day! (see ... walking on sunshine!) I have been smiling ear to ear since!
I have some really good pictures to share. I just need my computer to cooperate. So hopefully soon I will get those posted here for you to see. I'm gathering some Christmas books to take to the hospital to read to Austin this month. I want him to hear all about the season. I also talked to the Catholic Priest at the hospital today about baptising Austin while there now, and doing the ceremonial end of it once he is home and in the "safe zone" to be out and about many others. So I am glad to have that set in stone and ready to go. I have been wanting to do it, I just kept letting it slip my mind while there at the hospital.
I have really been able to finally step back and relax. This is my life and I love it. Yeah, sure, it took a path I wasnt expecting... but I am okay with it. I have a wonderful family. I have finally been able to turn on the radio and enjoy it. Until now, it had been too much "noise" for me and my mind. I'm finding myself able to sit down and relax at home... i;m no longer constantly reading preemie books or looking on line for research. I am just living life again. It feels good.
Happy Holiday Season to you all. Remember to count your blessings and to always be thankful for what you have. So many others are facing tough times in their lives. Even if you feel yours is rough... someone somewhere is dealing with something worse. God Bless you all, and continued prayer is all I ask of you!
Today Austin is 1182 g = 2lbs 9oz. He is 14 1/2 inches long! He still needs to, on average, gain more weight per day, but has been resting more throughout the day, so hopefully that will enable him to hold onto his calories!! His feedings are going very well, and they upped his caloric intake today. Crossing fingers! I held him (KC) today for a while, and then I gave Austin a bath!!!!!! This was so amazing to do! I felt so needed! It was awesome! I was so happy when his nurse asked me if I wanted to do it! What a day! (see ... walking on sunshine!) I have been smiling ear to ear since!
I have some really good pictures to share. I just need my computer to cooperate. So hopefully soon I will get those posted here for you to see. I'm gathering some Christmas books to take to the hospital to read to Austin this month. I want him to hear all about the season. I also talked to the Catholic Priest at the hospital today about baptising Austin while there now, and doing the ceremonial end of it once he is home and in the "safe zone" to be out and about many others. So I am glad to have that set in stone and ready to go. I have been wanting to do it, I just kept letting it slip my mind while there at the hospital.
I have really been able to finally step back and relax. This is my life and I love it. Yeah, sure, it took a path I wasnt expecting... but I am okay with it. I have a wonderful family. I have finally been able to turn on the radio and enjoy it. Until now, it had been too much "noise" for me and my mind. I'm finding myself able to sit down and relax at home... i;m no longer constantly reading preemie books or looking on line for research. I am just living life again. It feels good.
Happy Holiday Season to you all. Remember to count your blessings and to always be thankful for what you have. So many others are facing tough times in their lives. Even if you feel yours is rough... someone somewhere is dealing with something worse. God Bless you all, and continued prayer is all I ask of you!
Saturday, December 3, 2011
"i have two sons, a 7 yr old and a 1 month old"
Today Austin is now one month old. I know, crazy, RIGHT?!
Yesterday he was beginning to desat more and more. :o/ He has so much secretion in his lungs from the ventilator, it seems they're constantly sucking out gunk from them. Poor buddy. He hates it, too. His oxygen requirement is kind of staying the same because of this... 40%. I did hold him swaddled in my arms yesterday so that I could look at him and talk with him... I have some fantastic pictures that I will be sharing as soon as I get them downloaded. He weighed 2lbs 9oz!!!!
Today- Austin is 1 month old!! 30 wks gestational.... I love this little peanut!!! He looked good today, however his desats are continuing and seemed to be lower than they have been lately.... His oxygen requirements are getting a little higher... 42% today. I called tonight to check on him, and she moved him up to 50% because of increased desats. She said she's going to give him about an hour or so with 50% and try to get him lower throughout the night. She said his secretions are increasing, so it seems. Scotty and I have agreed to get in there and talk to the doctors in more depth tomorrow. I will keep you posted. Overall, though, he is doing well. He has been slowly gaining weight and is continuing to do great with his feeds. He's kind of at a plateau for progress, but not getting worse, or moving backwards. So I guess at least that's not happening. I'd like to see his oxygen saturation get to where he needs to be and get him off the ventilator! The sooner the better, but not before he's ready. I just will feel like I can "breathe easier" once he's off of it.
Again, Thank You for your continued support!!!!
***my life as I know it..... and I love it***
Yesterday he was beginning to desat more and more. :o/ He has so much secretion in his lungs from the ventilator, it seems they're constantly sucking out gunk from them. Poor buddy. He hates it, too. His oxygen requirement is kind of staying the same because of this... 40%. I did hold him swaddled in my arms yesterday so that I could look at him and talk with him... I have some fantastic pictures that I will be sharing as soon as I get them downloaded. He weighed 2lbs 9oz!!!!
Today- Austin is 1 month old!! 30 wks gestational.... I love this little peanut!!! He looked good today, however his desats are continuing and seemed to be lower than they have been lately.... His oxygen requirements are getting a little higher... 42% today. I called tonight to check on him, and she moved him up to 50% because of increased desats. She said she's going to give him about an hour or so with 50% and try to get him lower throughout the night. She said his secretions are increasing, so it seems. Scotty and I have agreed to get in there and talk to the doctors in more depth tomorrow. I will keep you posted. Overall, though, he is doing well. He has been slowly gaining weight and is continuing to do great with his feeds. He's kind of at a plateau for progress, but not getting worse, or moving backwards. So I guess at least that's not happening. I'd like to see his oxygen saturation get to where he needs to be and get him off the ventilator! The sooner the better, but not before he's ready. I just will feel like I can "breathe easier" once he's off of it.
Again, Thank You for your continued support!!!!
***my life as I know it..... and I love it***
Thursday, December 1, 2011
4 weeks old
Austin is a big 4 week old baby today! Can you believe it??? He has gone through so much, and is such a strong guy. Four weeks... wow. It doesn't feel like he's been here with us this long, yet it feels like forever ago since I was laying in the hospital! One month on Saturday.... crazy.
Yesterday was a somber visit in the NICU. One of Austin's pod mates had passed overnight. I had told you all about her, Miracle. She was born at 24 wks and was 2 weeks old when she passed. The day before she passed, while I was there visiting Austin, she was having a very rough day. Alarming constantly. Her heart had stopped. Please take a moment, now if you will, and say a prayer for her family. What wonderful people.
Austin had a good past few days. He is still desatting with 40%m but its due to secretions in his lungs from having the ventilator in. His blood gas is still good. His chest x-ray today still showed hazy, due to fluid, so since his electrolytes are good, he will begin a 3 day course on the diuretics to flush his fluids. I called to check on him and he is doing well and has had a large urine out put (getting rid of the fluids) and his oxygen levels are going down already. He was down just a little at 37%-but moving in the right direction!
I held Austin for about an hour and fifteen minutes today. I told him about our new Christmas tree, and about his brother. My husband has been home sick the past few days, so i reminded Austin of his love and that he would be back to visit soon. Drew asked me to let him know to be strong and get better so that he can come home and be a new family member. :o) I told him all about life at home. And then we napped together!!! He is wonderful. Austin was awake and alert today. He still needs to gain weight... 1122g = 2obs 7oz... but he did go up on his calories today. Keep praying for the maturing of his lungs, and please pray for him to gain weight. Once he starts to gain weight, everything else should follow suit!
One day at a time is such a pleasant way of living, if you're able to stick to it. It really is not easy at times, but when I'm able to do so, it makes me feel so much better!
Thank you again for continued prayers!
Yesterday was a somber visit in the NICU. One of Austin's pod mates had passed overnight. I had told you all about her, Miracle. She was born at 24 wks and was 2 weeks old when she passed. The day before she passed, while I was there visiting Austin, she was having a very rough day. Alarming constantly. Her heart had stopped. Please take a moment, now if you will, and say a prayer for her family. What wonderful people.
Austin had a good past few days. He is still desatting with 40%m but its due to secretions in his lungs from having the ventilator in. His blood gas is still good. His chest x-ray today still showed hazy, due to fluid, so since his electrolytes are good, he will begin a 3 day course on the diuretics to flush his fluids. I called to check on him and he is doing well and has had a large urine out put (getting rid of the fluids) and his oxygen levels are going down already. He was down just a little at 37%-but moving in the right direction!
I held Austin for about an hour and fifteen minutes today. I told him about our new Christmas tree, and about his brother. My husband has been home sick the past few days, so i reminded Austin of his love and that he would be back to visit soon. Drew asked me to let him know to be strong and get better so that he can come home and be a new family member. :o) I told him all about life at home. And then we napped together!!! He is wonderful. Austin was awake and alert today. He still needs to gain weight... 1122g = 2obs 7oz... but he did go up on his calories today. Keep praying for the maturing of his lungs, and please pray for him to gain weight. Once he starts to gain weight, everything else should follow suit!
One day at a time is such a pleasant way of living, if you're able to stick to it. It really is not easy at times, but when I'm able to do so, it makes me feel so much better!
Thank you again for continued prayers!
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