Our little Miracle

Our little Miracle
"And the Child grew and became strong in spirit, filled with wisdom; and the grace of God was upon him." ~Luke 2:40

Thursday, December 8, 2011

Hanging on.

So Austin did have another scary episode in which he needed to be bagged again Tuesday night around 9:00pm.  His HR dropped to a very low 38.  He clamps down and needs some help to get things back up.  He recovered well, and went on to have an excellent night.  He had a great day yesterday.  I held him for KC and read him a book.  He was baptized and really looked well.  His oxygen is still between 40%-50%.... but he's hanging in there.  We should see some steroid affects in the next couple days, and if not (which we really need to see them start working) then his vent tube will be switched out to a larger sized tube which is a larger hole.  The airway should really open up in the next day or two, if the steroids work, and then he should be able to come off of the ventilator.  Yesterday he weighed 2 lbs 10oz, but lost a little over 20 g and is back to 2 lbs 9oz.  Still needing him to put on some weight, thus they continue to up his calories with fortification.

Today he is doing okay.  He's desatting here and there, but always able to bring himself up.  He has been set at a steady 43% oxygen all day.  I read him a book today and he liked it!  He listens and then as soon as I am done, he closes his eyes and falls asleep.  I love it!  I held him and talked to him and made up some Austin songs... it was nice.  He had a pretty good day.  I called to check on him at 6:15, he had another dip in oxygen and his HR dropped some too, but he just needed a little stimulation (brady cardia).  I love this little boy so much and hope and pray that I never have to face the reality of what this situation is capable to bring.  I feel confident he'll be home with me one day, but its been hard to shake the experience we had Tuesday afternoon.  My heart races and my nerves are a wreck each time I drive down to the hospital and walk through the NICU doors.  I don't want to see that again. 

Please continue to pray for him, as I know you all will.  Specifically - that the steroids work... that he's able to hang in there and not continue to have brady's and oxygen drops.  I love him so.  Thank you all! 

OH... and his hair is getting lighter and lighter!  He's going to be blond!  He looks a lot like Drew as a baby, and makes a lot of the same expressions.  So neat!!!!!

19 comments:

  1. I am so glad you share him with us! Please keep the updates going. If it is okay with you I am going to begin a new post in the FEB board about him so others can share your story. I find Austin to be inspirational!

    Sabrina FEB 12 Mama

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  2. photogamanda12/9/11, 7:36 AM

    Praying for you guys!!! Keep your head up momma!

    (Fellow bbc Feb 12 mom)

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  3. What a strong little man he must be taking after his mama! T&P are coming at you and ur family. hang in there hunny and stay positive it's what lil Austin will feel most besides all of your love.

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  4. Oh wow! I love the fact that he fell asleep to you reading a book :) So cute.

    Hang in there mama. I will keep praying.

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  5. I'm from your bcc birth board. Just wanted to let you know I'm praying for austin. Your example of faith and hope are beautiful. I think God chose you to be his mother for good reasons!! Praying those steroids take effect soon!!
    -jessica

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  6. Lidia S (ladylidia)12/9/11, 10:21 AM

    praying for your baby boy! may God bless him with health and strength...Visiting from the Feb 2012 Birth club!

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  7. Thinking of you and Austin! I am a member of the Feb 2012 Birth Club on babycenter. Another member mentioned your blog so I came here to read about your story. You, Austin, and your family are an inspiration! Keep the faith. Sending love your way.

    Trisha

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  8. It's awesome to hear your little Austin is being such a fighter! Your FBB Mamas are pulling for you and are here if you need support. Hang in there Mama!

    Trish (Austin'sMommy0604)

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  9. I will be praying for all of you! I know God will take care of Austin! Stay strong momma!

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  10. Such a strong little guy!! Lots of love to Austin!

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  11. Wow, the both of you are so strong, hang in there! Your such an amazing woman, I will be praying for you and your LO.

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  12. I am so inspired by your story and I will continue to send positive thoughts to you and lil Austin for his fast and speedy "recovery!"
    I am from the BBC Feb 2012 birth board and would like you to know alot of us are there thinking about you guys and your "good fight"!
    Stay strong and positive mama!

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  13. Showing some love from your Feb 2011 group. <3 Praying for sweet Austin.

    Bridget (bmp0226)

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  14. Hi! I am from your birthboard and have been extrememly moved by your story. I look forward to little Austin's progress and will continue to keep him in my thoughts and prayers.

    ~Emily
    (eesmith83)

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  15. Keeping you in my thoughts!

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  16. hang in there! Praying for your lil baby boy.

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  17. Just wanted to let you know that many thoughts, prayers and hugs are being sent your way.

    Chellemc521 from BabyCenter Feb 2012 birth club

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  18. I'm from your Febuary Birth Board on Babycenter. I just wanted to tell you I'll be keeping Baby Austin and your family in my prayers and just wish you guys the absolute best. Austin is unbelievably beautiful and is such a strong little man.(:

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  19. Sending strength and love to little lion cub Austin!

    Hugs from Brazil

    Bota

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